
click here to see my blog
Hi â?? my name is Rafe Walker and I am 10 years old.When I was 8 years old I was diagnosed with an inoperable brain tumour! Pretty scary!I have had to live with this thing (I call it WARTY) in my head for nearly 2 years now â?? the doctors are just watching it and waiting for it to do something (like get BIGGER) before they zap it with radiotherapy. This is because they cannot operate on it as it is deep down in my brain , near the top of my brain stem and if they poke around there they could damage my brain and that is not a good thing!!!Warty was making me ill- it was blocking a tube in my brain that allows brain fluid to flow â?? this made me have lots of horrid symptoms – I was vomiting (alot), getting evil headaches and Bellâ??s palsy in my face. So I have had brain surgery to relieve this pressure. The operation is called a 3
rd Ventricolostomy and itâ??s like burning a hole in the brain to allow the fluid to move again â?? a bit like getting a new drain! It has worked! The horrid symptoms have gone and I am getting back to normal again, but I still get very tired and hot and get nasty headaches but I can cope with that! I have a WICKED scar on my head and all the girls at school love me cos I look cool!!I have to go for MRI scans every 6 months now to check on Warty. MRI scans are not very nice but I listen to my CDs and pretend I am not there. The worst bit is when they inject dye into my arm (it shows up on the scans of my brain) â?? that really hurts and I yell quite a bit!The doctors and nurses at Birmingham Childrenâ??s Hospital have been great. My favourite is Mr Solanki who is my neurosurgeon. He is very kind and calm and funny and listens to me if I am worried. I am helping him raise money for a new scanner for the hospital that will allow him to operate on alot more kids with tricky brain problems. My fundraising page is
www.justgiving.com/rafesbrain Â

Me & My twin sister
                                     MY BLOG IS
www.rafesbrain.co.uk FOLLOW ME ON TWITTER – Rafesbrain