Our Vision, Our Mission
VisionTo improve the experience of all families whose lives have been affected by childhood brain tumours.Mission StatementTo accompany families though their difficult journey, and take affirmative action to resolve, or improve, any difficulties that they encounter along the way.Through campaigning and community building, we inform and educate the services and organisations that are involved with childhood brain tumours, and aim to create a positive and sustainable difference for the benefit of all...
read moreBe Child Cancer Aware
PLEASE WATCH OUR NEW VIDEOThis is the first of the “Be Child Cancer Aware” videos to be produced by theLRT as part of our involvement in the family lead 2010 Gold Ribbon campaign here in the U.K, please visit the website by clicking on any of the links provided. The video is very close to our hearts and features an amazing little boy, Ted, who was diagnosed with A.L.L Leukaemia at the tender age of 6 months. But Teds personality is bigger than cancer and hes winning!.You can help support the campaign by purchasing a gold ribbon,...
read moreChildren’s brain tumour clue found in genome
An international study that included doctors at Toronto’s Hospital for Sick Children appears to shed new light on a particular type of brain tumour in children that often proves deadly. “We have the potential for a new diagnostic tool for a very aggressive type of brain tumour,” said Dr. Annie Huang, senior author of the study in Monday’s issue of the journal Cancer Cell.Because these tumours, known as CNS-PNETs, are extremely rare â?? there are only two or three found in patients at the large pediatric hospital each...
read moreFundraise for us!
Want to do something and cant think what?Want to help a Child who is suffering?Want to have that lovely warm feeling inside?Well why not take part in a fundraising event for the Liberty Rose Trust?You don’t have to be super fit or run a marathon, it could be a tea and cakes party, a tombola or you can climb a mountain, its up to you.If you are interested or would like to help please email...
read moreCamille’s Appeal
The Liberty Rose Trust is extremely proud of this video. It was truly an honour to be asked by Camille’s courageous parents, Hayley and Martin Shave, to produce the video especially for them.Please watch it and share their story with as many people as you can using this link http://animoto.com/play/Pv64Ek3EVmNkInbC7XkIUw# hopefully you will find it just as uplifting and inspirational as we do! The family have set up this charity with the purpose of creating funds for Camille and other young children living in East Anglia who...
read moreRafe’s Cool For Cats
click here to read my story The LRT is very proud to have been given the honour of publishing an extract of Rafe Walkers story by his amazing Mum Elizabeth Walker. You can read the extract by simply clicking here or by visiting the family stories section on our website. Once there you will also find a link to Rafe’s personal blog where you can read his full story about life with “WARTY”If your child has been affected by a brain tumour we would love to hear from you, publishing these inspiring stories helps us with our...
read more10% off and 10% to Charity at Garden King!
November 28th – November 29th, you can save money whilst also giving to charity!This weekend only Garden King are offering 10% off everything in store, plus they’ll also donate 10% of your spend to 1 of 4 charities!So what are you waiting for? Garden King have everything you could possibly need  this winter, whether you’d like to spruce up your home and garden with some festive lighting, perhaps a little DIY is needed at home before your relatives come to visit, or even choose from a wide selection of wonderful items that...
read moreGenetic Clue Surronding Glioma Brain Tumour
Scientists have pinpointed a mutated gene as key to the development of some types of glioma brain tumour.The mutation leads to hugely increased levels of a chemical in the brain, which seems to feed the cancer.The Nature study suggests that detecting higher levels of the chemical could provide doctors with a useful diagnostic tool.It also raises hopes that blocking production of the chemical might prevent the cancer getting worse.PrognosisPeople with particular brain tumours, such as lower-grade gliomas, often carry a mutated version of a gene...
read moreIts International Brain Tumour Awareness Week!
Nov 1st – 7th is International Brain Tumour Awareness Week.Brain Tumours are now the leading cause of death in childhood cancer, to raise awareness this week we have produced a 1 minute awareness video and highlighted some of the stark facts throughFacebook and Twitter.Making the public aware of the desperate fight for survival these brave children face is vital if we are to make a difference to the level of support that the families currently receive. Heightened public awareness is also the leverage needed to force the government to...
read moreTell us your story
With so many children out there that are suffering with a Brain Tumour plus many more that have been affected by this forgotten cancer, and yet so few people know of the families struggle and heart ache.At the Liberty Rose Trust, we aim to make these tiny voices heard.Tell us of your story, following the inspirational stories of Liberty Rose, Oliver Smart, Cara Louise, Abi Hill and Poppy Guilder, we want your voices to be heard.Please email carl@libertyrosetrust.org and we will post your story on...
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