The LRT is dedicated to raising awareness about childhood Brain Tumours. We have several leading awareness campaigns which engage the public through social media and video. If you would like to know more or even get involved please email carl@libertyrosetrust.org. Remember it can be as simple as CLICK, WATCH, SHARE. We have already raised the awareness of over 18,000 people worldwide and you can find us in a whole host of places like Facebook, Bebo, Myspace, Twitter, YouTube and Flickr! 

The 2010 be childhood cancer aware campaign will soon be launched, and we hope we can count on your support too.To raise awareness we need your HELP please contact carl@libertyrosetrust.org to find out more about our social media & video campaigns.

Were you aware that

• Brain Tumours are the leading cause of death from childhood cancers amongst persons up to 19 years
• There are more than 120 different types of Brain Tumours, making effective treatment very complicated
• Many Brain Tumours remain incurable and 60% of those who do survive often face significant disability following diagnosis and treatment
• Brain tumours are the most common solid tumours that occur in children
• Children of any age may be affected
• 76 percent of children diagnosed with a brain tumor are younger than 15
• Unlike other benign tumours elsewhere in the body a low grade tumour sometimes referred to as a benign brain tumour have a strong tendency to re-grow and may result in death
• Enhancing the quality of life of children with brain tumours requires access to quality specialty care and ready availability of follow-up care and rehabilitative services
• Improving the outlook for children with brain tumours requires research into the causes of and better treatments for brain tumours
• Treatment of a brain tumour is different from treatment of tumours in other parts of the body. Brain surgery needs to be extremely precise and not all therapeutic drugs are able to cross the blood brain barrier
• Brain tumours may cause a wide variety of symptoms. These are usually caused by a rise in pressure within the brain (raised intracranialpressure). This happens when the tumour blocks the flow of the cerebrospinal fluid (CSF) around the brain (this is called hydrocephalus). There are many varied symptoms, including headaches, feeling and/ or being sick, drowsiness, irritability, fits (seizures) or moments of unconsciousness.

We hope that through raising  awareness we will  address the low levels of funding that Children’s brain tumour research currently receives. The BBC have just published an article covering many of the points we’ve been trying to raise awareness about as a charity. You can read the full article here. Here are two Quotes from excerpts: “More funding needs to be ploughed into research into the “forgotten cancer” of brain tumours”"Only £3m a year – 1% of cancer research spending – goes on brain tumours, meaning survival rates are low”

Significant numbers of children in the UK are suffering from preventable levels of disability, particularly blindness, and premature death because of poor diagnosis of brain tumours. A new study by scientists at The University of Nottingham’s Children’s Brain Tumour Research Centre  shows that prolonged and slow diagnosis can make long term survivors of childhood brain tumours up to 10 times more likely to suffer disability. 450 children in the UK are diagnosed with a brain tumour every year. The average time between the onset of symptoms and diagnosis in children in the UK is between two and three months, that’s up to three times longer than the rest of Europe and the USA. click here for the full story